The Rare Disease Day web page is asking people to upload their photos and share their story. You can do this by following this link: Tell Your Story . People from around the world are sharing their stories and spreading awareness!
Are you on Facebook? Good! G-PACT is asking everyone to change their profile picture to spread awareness of the rare diseases that can cause DTP. Here are a few pictures you can use. Just right click on them, select "save picture," and then upload it as your profile picture on Facebook! If you are creative, make your own. I bet one of your friends wouldn't mind borrowing it.
Have you written your congressmen yet? G-PACT has written a letter you can download and send as is, or add your story to it before sticking it in the mail. The document can be found by following this link: Write Your Reps! The document includes the names and addresses of the representatives to make the process just a little bit more convenient.
And last, but not least, if you blog we'd love it if you would write a post for Rare Disease Day. Share your story, make a collage of pictures that show what your life is like, whip up a video (OneTrueMedia is a good website to make one!), write a poem, or post a Wordless Wednesday photo that says it all. Then share the link on G-PACT's Facebook Fan Page.
Have any other suggestions of things to do? Leave a comment and we'll share them!